Results for 'patient advocate in research'
Patients as a key stakeholder for scientific conferences
patient involvement in scientific congresses, patient advocate in research, ISMPP podcasts, medical and patient engagement, juvenile arthritis awareness, patient voice in healthcare
In this episode of Informed, guest host Dawn Lobban is joined by Simon Stones, an experienced patient advocate and senior medical writer. They discuss the topic of patients at scientific congresses and conferences. Simon shares his journey of being diagnosed with juvenile arthritis and inflammator…
Nov 23rd • 17 mins listen
Bringing the Patient Voice into Company-Sponsored Publications: The Med Comms Perspective
patient participation in scientific publishing, medical communications and patient engagement, roles of patients in research, communicating with patient advocates, patient education in research, patient engagement podcast, scientific publishing process
Continuing our look at increasing patient participation in the scientific publication process, this episode of InformED will look at the process from a medical communications perspective. Our guests discuss questions to think through during the planning stages including: the different roles that pat…
Sep 12th • 20 mins listen
Industry Challenges Contribute to Financial Toxicity
In this third panel discussion from ONS’s Health Policy Summit in Washington DC, Alan Balch, PhD, Patient Advocate Foundation chief executive officer, Mike Ybarra, MD, FAAEM, FACEP, vice president of medical affairs for the Pharmaceutical Research Manufacturers Association, and Jeannine…
Feb 18th • 66 mins listen